Alzheimer’s News August 2022

Alzheimer’s News August 2022
The following are excerpts from the “What It’s Like Living with Alzheimer’s” article in the summer 2022 edition of ALZ Magazine:
Five Things People Want You to Know¬–
1. Some days are better than others – and that is ok. Everyone has good and bad days, but for those living with dementia or Alzheimer’s an “off” day means difficulties with everyday life. Validate the person’s efforts to be successful and understand that some tasks or conversations may need to be picked-up at another time.
2. You don’t need to fear people with Alzheimer’s. Much of the stigma surrounding Alzheimer’s is rooted in fear. Take the time to learn about it. Knowledge can create empathy and shows you care about the person.
3. Don’t make assumptions based on a person’s diagnosis. An Alzheimer’s diagnosis is life-changing, but it’s not the end. Don’t count a person out. People with the diagnosis will have to adjust routines. A person may experience some deficits, some behavioral or memory problems, but their lives don’t stop.
4. No two journeys are the same. Recognize and respect how each individual feels and what they need, even if it’s the opposite of someone else you know living with dementia. No matter what, each person deserves grace and peace.
5. Talk to each person directly. Engage with them the way you always have. It might take them longer to respond or you may have to repeat yourself, but they still need and want to communicate and feel included. They would much prefer to talk and help clarify things that don’t make sense rather than being ignored.

You can learn more by going to www.alz.org/help-support/resources or the Alzheimer’s Helpline which is accessible 24/7 via 800-272-3900 and staffed by master’s level clinicians to assist with crisis situations, decision making, and disease information. You can find virtual dementia caregiver resources online at alz.org/covid19help. Tools and support are also available in Spanish.
Want to learn more about the Alzheimer’s Association and what they do here in St. Louis? Visit alz.org and/or contact PUCC’s Faith Outreach Ambassador with the Alzheimer’s Association, Joyce Ruiz at joyceruiz7@gmail.com